Children's Health and Wellness

Support Groups

This page contains links to other Internet sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these websites, nor do these sites endorse the information contained here.


Genetic Alliance

4301 Connecticut Avenue NW, Suite 404

Washington, DC 20008-2369

Phone: 202-966-5557



National Down Syndrome Congress

30 Mansell Court, Suite 108

Roswell, GA 30076

Toll free: 800-232-6372 (NDSC)

Phone: 770-604-9500



National Down Syndrome Society

666 Broadway, 8th FloorNew York, NY 10012Phone: 800-221-4602 or 212-460-9330



National Organization for Rare Disorders (NORD)

55 Kenosia Avenue

Danbury, CT 06810

Phone: 203-744-0100

Toll free: 800-999-6673


S.O.F.T. (Support Organization for Trisomy 18, 13, and Related Disorders)

2982 South Union Street

Rochester, NY 14624

Phone: 585-594-4621

Toll free: 800-716-7638 (SOFT)


The Compassionate Friends

P.O. Box 3696Oak Brook, IL 60522Phone: 630-990-0010

Toll free: 877-969-0010

Online Source: national Down Syndrome Congress. Contact
Online Source: Support Organization for Trisomy 18, 13 and Related Disorders, Contact
Online Source: Centers for Disease Control and Prevention. Facts About Down Syndrome
Online Source: The Compassionate Friends. Contact
Online Source: Genetic Alliance. Contact
Online Source: National Down Syndrome Society. Contact
Online Source: National Organization for Rare Disorders. Contact
Online Editor: Metzger, Geri
Online Medical Reviewer: Clark, Heather, MS, CGC
Online Medical Reviewer: newMentor board-certified, academically affiliated clinician
Date Last Reviewed: 6/16/2013
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