A Letter From the Director
Welcome to 2013!
Each New Year offers hope for the year to come.
It is our mission to improve the health and quality of life of children with neurological disorders through the promise of state-of-the-art care, advanced research and professional and community education. As we embark on 2013, we intend to offer much more than just hope to children living with debilitating neurological and neuromuscular disorders.
In this newsletter we will highlight the innovative, state-of-the-art developments in medical management and clinical care that are improving the health and quality of life for patents with neuromuscular disorders at Barrow Neurological Institute at Phoenix Children’s Hospital.
The Neuromuscular Program offers hope to children and families with neuromuscular disorders by assembling a multidisciplinary team of specialists to provide state-of-the-art care for the treatment and management of these complex disorders. The program follows clinical pathways and algorithms to coordinate and centralize the subspecialty care provided to patients that has become the standard of practice at Barrow at Phoenix Children’s.
The life expectancy for children with neuromuscular disorders has increased due to the advancement of pharmaceutical interventions and rehabilitative treatment options. The Neuromuscular Program draws on the latest evidence-based protocols to create individually tailored treatment plans that optimize patient outcomes.
Dr. Ewa Brandys is also optimizing patient outcomes by restoring ambulation in children who have lost it through injury, congenital anomalies, stroke, or cancer. Funding from a grant through the Leadership Circle at Phoenix Children’s Hospital enabled Dr. Brandys, division chief of Physical Medicine and Rehabilitation to obtain a robotic walking device with functional electric stimulation.
Known as the RTI 600, this sophisticated machine provides hope to children with neurological disorder who have lost their ability to walk by retraining the legs and spinal cord to walk again. The machine, which recently arrived at the hospital, will be part of our new inpatient and outpatient rehabilitation center, which will undergo a renovation that begins in the next few months. I look forward to sharing our progress and success with you along the way.
Improving the health and quality of life of children with neurological disorders requires keeping up with the latest in science and clinical care. To that end, Barrow at Phoenix Children’s would like to invite you to the 17th Annual Children’s Neuroscience Symposium, being held from February 24, to February27. The symposium will highlight the most recent advances and current issues in pediatric neurosciences. For more information on the symposium or to register, visit www.phoenixchildrens.org/cns2013.
This year is forecast to be an extraordinary one for Barrow Neurological Institute at Phoenix Children’s Hospital. It is my privilege to provide you with insight into the amazing care, science and knowledge being developed here.
I hope you find our newsletters helpful and informative. Please, feel free to contact me or the staff if you have any suggestions about improving our newsletter, other topics of interest, or improving our care of the children and service to you. Thank you very much.
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