EB Clinic Resources for Children and Families
As one of only four clinics in the country, the Epidermolysis Bullosa Clinic at Phoenix Children’s Hospital is a vital resource for children with EB and their families.
Our team of physicians, EB nurse and staff are dedicated to providing information, resources and a welcoming, supportive environment to children with EB, and their families.
EB Clinic Newsletter
Phoenix Children's EB Clinic Newsletter offers information about events, activities and medical research developments that affect the lives of children with EB and their families.
Winter 2012 edition (PDF)
Fall 2011 edition (PDF)
Spring 2011 edition (PDF)
The EB Clinic physicians may suggest clinical trials that may benefit children with EB. Learn more about clinical trials.
Camps for kids with EB
There are camps where children with EB can bond with new and old friends including:
- Camp Discovery (summer camp) from the American Academy of Dermatology
- Camp Spirit (winter camp) from Children’s Hospital Colorado
- Camp Wonder is for children with severe skin diseases
- The Painted Turtle Camp is for seriously ill children
The cost to care for children with EB can be high, including for bandages to treat EB symptoms on a daily basis. The EB Clinic may suggest resources, in addition to health insurance, for financial help, such as:
- Phoenix Chidren’s Hospital Leadership Circle grant for genetic testing
- First Things First grants for help with health care costs and supplies to care for children with EB
Traveling to Phoenix Children's Hospital
The EB Clinic at Phoenix Children’s Hospital is one of only two comprehensive, multidisciplinary EB clinics in the Southwest. Children with EB and their families sometimes travel across the country to come to Phoenix Children’s.
- Location and directions
- Interactive campus map
- Virtual tour of the new Hospital
- Local hotels and discounts (PDF)
- Ronald McDonald House