Pediatric Nephrology Patient Stories
Braden was diagnosed with post urethral valves while in utero and had two fetal surgeries to have a shunt placed in his bladder. Braden’s family knew he would most likely need a kidney transplant at some point and from then on focused on nutrition to postpone the transplant as long as possible. In 2014, Braden went in for his typical monthly appointment to find that his kidney function was teetering around 10 percent; he was in kidney failure. He spent the next year receiving dialysis every night while he slept. In March 2015, Braden’s mom donated her kidney to her son and Braden has enjoyed his freedom from dialysis every day since, spending time looking after cattle with his dad and granddad.
Daniel, 16, was born premature with acid reflux, the lung capacity of an 80 year old and low muscle tone, which slowed his development. When he was two months old, he was put on an apnea monitor to help stabilize his breathing and has continued to visit the Division of Pulmonology at Phoenix Children’s for annual check-ups. As a pre-teen, Daniel was diagnosed with a vitamin D deficiency and referred to the Division of Nephrology at Phoenix Children’s for follow up, where he was diagnosed with stage 1 chronic kidney disease; his right kidney was shrinking. Four years later, Daniel continues to be seen on a regular basis for not only kidney disease, but also a second-degree heart block, which he was diagnosed with most recently.
A sophomore in high school, Daniel has been running on his track team for the past three years and is doing remarkably well. His heart and lungs continue to get stronger and his kidney has stabilized. Daniel has big dreams for himself and plans to start his own business building computers.
As Phoenix Children’s continues to strengthen its Division of Nephrology, it maintains the same priority to continue to improve quality care and the patient experience. As Phoenix Children’s attracts exceptional new nephrology physicians, the division is able to expand clinical services including those in dialysis and kidney transplantation. Additionally, the division is working to develop new programs to enhance patient care, including a comprehensive hypertension program, chronic kidney disease program and the care of children with kidney disease resulting from diabetes mellitus and obesity-metabolic syndrome.
In 2010, when Chance was in kindergarten, he was diagnosed with a blocked ureter. He underwent pyleoplasty surgery to correct it, but his kidney began to leak into his abdominal cavity. Chance finally recovered and received a clean bill of health about 2 months later. Chance started developing the same symptoms and after a few months of tests, found that scar tissue had formed and he would have to undergo the surgery again. He recovered once more, but one year later Chance started getting sick again. After a lot of testing it was discovered that scar tissue had yet again developed in Chance's ureter.
This February, Chance underwent the same surgery at Phoenix Children’s Hospital, but this time it was open pyleoplasty. Chance became ill afterward, and they found that his stomach and intestines were paralyzed due to a leak from his kidney to his abdominal cavity. His belly became distended and he was in a lot of pain. Chance was sent home, but only made it through the night. By morning he was severely dehydrated and he was taken by ambulance back to PCH. A test was done that showed his whole abdominal cavity was full of urine and he had to undergo emergency pyleoplasty again to fix the leak and clean out his body.
Chance has been through more medical procedures and surgeries in 3 years than many of us will ever face in a lifetime.