Programs & Services
Rare Pediatric Movement Disorders
The rare movement disorder specialists at Phoenix Children’s Barrow Neurological Institute work with children of all ages, including adolescents who are transitioning to adult care. We collaborate across several medical specialties to treat a full spectrum of movement disorders, [link to Pediatric Movement Disorders Conditions page], including rare movement disorders [link to Conditions page] and related conditions.
Evaluation and Diagnosis
Rare pediatric movement disorders require careful evaluation by highly specialized doctors. When there are symptoms of a rare disorder, your doctor may refer your child to subspecialists at Phoenix Children’s for in-depth, multispecialty evaluation.
Our diagnostic services include:
- Assessment of developmental delays
- Biopsies for certain conditions
- Evaluation of current and periodic or chronic symptoms
- Family health history
- Genetic testing
- Lab tests
- Medical history, including neurology-specific review
- Medical records review and consultation
- Motion analysis lab evaluation
- Neurologic exam
- Physical exam
Treatment of Rare Movement Disorders
Doctors treat your child based on diagnosis and severity of condition. Your doctor may discuss medical therapies and, in some instances, surgical or other advanced procedures [link to Programs & Services page in Pediatric Movement Disorders] used for severe movement disorders.
We’ll talk to you and your child about the specific diagnosis, as well as education, screening and preventive measures that can help manage symptoms and improve quality of life. There are many support programs and resources that our team can refer you to for more specialized help at the Barrow Neurological Institute, throughout Phoenix Children’s Hospital, and through community and national networks.
Your child’s team [link to Team page in Rare Movement Disorders] may include a pediatric movement disorders neurologist and other fellowship-trained specialist and subspecialist doctors.
Neurologists and other doctors who contribute to care for rare movement disorders combine resources and expertise across medical specialties, including:
- Motion analysis expertise
- Movement disorders neurology [link to Peds Movement Disorders landing page]
- Pediatric psychology
- Physical medicine and rehabilitative services (PM&R)
- Speech, occupational and physical therapies
- Seating and Mobility Clinic
If your child has a learning or behavioral disorder, doctors may recommend special classes, psychotherapy or other individualized therapies as part of a comprehensive care plan.
For certain conditions, neurologists may refer your child to the neurogenetics clinic at Phoenix Children’s Barrow Neurological Institute.
Our neurogenetics clinic provides highly specialized expertise in rare genetic disorders and treatment for genetic conditions that affect the brain, development and function. We work across medical disciplines to identify problems and contribute to holistic care for your child’s unique needs.
Our services include:
- Advanced neuroimaging of the brain
- Assessment of developmental disorders
- Diagnosis and care for related conditions, such as seizures
- Evaluation of brain and metabolic and movement disorders
- Genetic testing and consultation
Research and Clinical Trials
The Barrow Neurological Institute at Phoenix Children’s is nationally recognized for research that improves our understanding of rare movement disorders and related pediatric neurological conditions. We work with other academic and scientific leaders to do in-depth scientific studies.
Researchers translate scientific findings to develop and apply better diagnosis, care and quality of life for children with rare movement disorders. This gives your child access to the latest and best care for rare movement disorders.
Resources and Support
Movement disorders can make everyday life more challenging. We take a holistic approach to help your child manage specific areas of concern. Your child and your family can find a wide range of resources and support to match your needs along the way.
We offer counseling services for individuals or families, and specialized support groups so you can find expert guidance while meeting understanding families and leaders who share information, insights and friendship.
Your care team can help direct you to helpful services and support at Phoenix Children’s and in the community. Just ask us anytime you have specific concerns, challenges or questions.