Time spent in the Hospital for families is intense and stressful, making it difficult to retain information. That is why we share a digital Journey Board with you.
The Journey Board is a tool designed to help you identify the important questions regarding care for your child. Every box on the Journey Board is something you may need to learn about such as "I can tell you about my child's medicines."
We want to make sure that when you take your child home you understand your child’s condition, how to treat it, what problems to look for, and how to respond. We also want to make sure you know who to call if you have questions or concerns.
If you don’t understand something about your child’s care, don't be afraid to ask. If English is not your first language, please request an interpreter.
If your nurse or doctor does not give you a Journey Board, request one. Our Journey in the Hospital™ is a Journey Board appropriate for any diagnosis.
How to use your Journey Board in the hospital
Every day of your child's stay at the hospital, our medical team will talk to you about your child’s care. During these conversations, pick a topic on the journey board to learn more about and discuss it with the team.
You do not have to do these in order. Do everything that fits your situation. Skip anything that does not fit your situation. Add your own questions. If there is something you do not know, but want to know, ask your nurse or doctor.
Each journey board also contains cues like, “Now that you’ve read this, tell your nurse or doctor how you would . . .” Ask questions, take notes and when you're ready, follow the cues to teach what you know back to your nurse or doctor. It is an opportunity for the medical staff to make sure they're communicating what you need to know clearly.
The Journey Board App
In the Hospital, we use paper Journey Boards to show you what you need to know before going home. We also offer a free app to help guide parents through their child's hospitalization, Our Journey in the Hospital™.
How to use Our Journey in the Hospital app
Our Journey in the Hospital app, like the printed version, is designed to help you make sure that by the time you leave the hospital. It contains:
- Topics to discuss and teach back to your healthcare team
- Information and resources, such as PDFs and links to online information
- Links to the Emily Center's online health resources including the website, Facebook and Twitter pages
- An online form to request specific health information from The Emily Center
- Information on what services The Emily Center offers without cost to you
- How to contact The Emily Center through email, Facebook, or Twitter
If your child returns to the hospital, or if you want to refer to the app for doctor’s visits, you can uncheck all you’ve done and delete you notes and start the Journey process fresh.
Download the app
Check out the Journey Board Facebook page.
If you want more information about your child’s condition, treatments or care, ask the nurses at The Emily Center.
The Emily Center at
Phoenix Children’s Hospital
1919 E. Thomas Road
Phoenix, AZ 85016-7710