The Palliative Care Team focuses on improving quality of life for children with life limiting conditions and their families. Our holistic, interdisciplinary approach addresses each patient family’s unique needs by engaging physicians, social workers, child life specialists, nursing, chaplains and counselors to support them across multiple aspects of their lives.
The Palliative care team’s focus is to improve quality of life through pain and symptom management, coordinating care, assisting with goals of care and decision making, sibling support, psychosocial, emotional and spiritual support. When needed, we can provide comfort and end of life care as well as bereavement support.
The Children and Families we Care for:
We work with children facing different types of diagnoses such as:
- Muscular Dystrophy
- Serious Congenital Heart Diseases
- Cerebral Palsy
- Severe Brain Disorders
- Neuromuscular Disorders
- Muscular Dystrophies
- Serious Genetic Conditions
- Complications from Prematurity
- Serious Birth Defects
- Cystic Fibrosis
How We Help:
- Assess and treat symptoms related to your child’s condition
- Provide support for decision making and advance care planning
- Help coordinate care and keep communication open between families and the health care team
- Home support through our palliative care home team and hospice when needed
- Family support to cope with having a child with a life limiting condition
- Bereavement support as needed
The palliative care team works closely with the social workers in each unit in order to effectively coordinate care for the whole family.
The palliative care team coordinates with each unit’s Certified Child Life Specialists in order to support the patient as well as any siblings.