Cystic Fibrosis (CF) Program
Cystic fibrosis (CF) is a chronic disease that affects approximately 40,000 children and adults in the United States. This inherited disease produces thick mucus that makes breathing difficult, causes lung infections, and often prevents normal digestion. Cystic fibrosis is considered a life-shortening disease, but advances in care have increased survival into adulthood, and even more promising new therapies are being developed.
Phoenix Children’s CF Program and Adult CF Program are the oldest and largest CF Programs in Arizona. We provide comprehensive care to nearly 500 individuals with cystic fibrosis ranging in age from infancy to well past 60 years of age. Our patients come from all areas of Arizona as well as out-of-state.
CF Care Center
Outcomes for individuals with cystic fibrosis are optimized when care is received at an accredited CF Care Center. These care centers have specially trained CF providers and a dedicated CF support team. Our CF Care Center is accredited by the Cystic Fibrosis Foundation. In addition, Phoenix Children's is consistently recognized as a "Best Children's Hospital" by U.S. News & World Report.
Our CF team takes a proactive, family-centered approach to caring for children and adults. Our multidisciplinary team of specially trained doctors, nurses, respiratory therapists, dietitians, social workers, and other specialty providers work with your family to develop an individualized care. This includes focusing on routine visits, early identification of problems related to CF, family/patient/community education, maintaining mental and emotional health and how to approach living life with CF.
Our Family Education Day is used to update our families about clinical and basic research trends, advances in clinical care and other current and practical topics. Team members help organize support groups for caregivers and family members. The Cystic Fibrosis Patient/Parent Workgroup works with the CF team to identify issues important to patients and families.
Living with a chronic illness comes with a lot of questions. Our specialty pharmacy team is here to help. With enhanced offerings and more support, you can trust Phoenix Children’s Specialty Pharmacy to provide you with the best care possible while guiding you through your child's treatment process.