Medical Specialties

Long-Term Outlook for Children with 22q11.2 Deletion Syndrome


With the proper treatment of heart defects, immune system disorders, and other health problems, the vast majority of children with a 22q11.2 deletion will survive and grow into adulthood.

These children will generally need extra help throughout school and will need long-term care for their individual health needs. 

Although it is not common, some children with the syndrome may have behavioral conditions, such as autism, attention deficit disorder (ADD/ADHD), obsessive compulsive disorder (OCD), or anxiety.

According to the Velo-Cardio-Facial Syndrome Educational Foundation, most individuals with the syndrome have some behavioral problems.

The occurrence of psychiatric disorders is higher for adults with 22q11.2 deletion syndrome, but medical researchers are still investigating the exact nature and risk of these disorders.

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