Resources
Cystic Fibrosis (CF) Program
Phoenix Children’s Cystic Fibrosis Resource Guide
This resource guide is designed for individuals with Cystic Fibrosis and their families. We’ve included numerous links to materials on a wide range of topics. Given that we do not manage many of the outside links, you may come across information that seems confusing or contradictory. Please ask your CF physician or staff for clarification, as the CF staff are the most up to date about your needs.
Phoenix Children’s Links:
- Medical Records Request
- Patient Portal
- Family Advisory Council Application and Information
- Emily Center Family Health Center
Cystic Fibrosis Foundation Links:
- Cystic Fibrosis Foundation
- Cystic Fibrosis Foundation Local Chapter & Event Schedule
- CF Compass
- CF Peer Connect
- CF Rise Transition Program
- CF Legal – please contact the social workers at the CF Center (602-933-0985)
Non-Affiliated Programs and Support:
- Attain Health Peer Engagement Group
- Raising Special Kids
- Boomer Esiason Foundation
- Happy Heart Families
Financial Support:
- HealthWell Treatment Fund
- HealthWell Vitamins and Supplements fund
- GoodRx
- WIC Nutritional Support
- Ronald McDonald House Locations - Addresses
- Co-Pay/Deductible Assistance Resource List
- Benefits Assessment Guide
- Insurance: Accumulators, Maximizers, & People with CF
Programs:
- Arizona Early Intervention Program (AzEIP)
- Arizona Long Term Care
- Social Security Disability Starter Kit
Academics and Transition:
- Tips for Sending Your Child with CF to Kindergarten
- Individualized Education Programs and 504 Plans
- CF Community Blog – Pediatric to Adult Care
- Adult Guide to Cystic Fibrosis
- College Resource Guide